Unique ID issued by UMIN | UMIN000048067 |
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Receipt number | R000054566 |
Scientific Title | Patient Pathway, Burden and Priority in Life with Dedifferentiated Liposarcoma from the Perspectives of Patients and Their Care Partners in Japan |
Date of disclosure of the study information | 2022/07/01 |
Last modified on | 2022/12/15 19:15:42 |
Patient Pathway, Burden and Priority in Life with Dedifferentiated Liposarcoma from the Perspectives of Patients and Their Care Partners in Japan
Patient Pathway, Burden and Priority in Life with Dedifferentiated Liposarcoma in Japan
Patient Pathway, Burden and Priority in Life with Dedifferentiated Liposarcoma from the Perspectives of Patients and Their Care Partners in Japan
Patient Pathway, Burden and Priority in Life with Dedifferentiated Liposarcoma in Japan
Japan |
Dedifferentiated liposarcoma
Hematology and clinical oncology |
Malignancy
NO
To understand experiences of patients with dedifferentiated liposarcoma and their care partners and to identify burdens and priorities in life through their feelings, thoughts, and behaviours.
Others
Not applicable
Demographics, symptoms and conditions, diagnosis and treatment history, burden of disease and treatment, burden of patient care support from others, access to information, liposarcoma disease awareness, future treatment, expectations of changes in life and social environment
Observational
18 | years-old | <= |
Not applicable |
Male and Female
Patient
Inclusion Criteria:
1) A patient with diagnosis of dedifferentiated liposarcoma
2) 18 years of age or older
Exclusion Criteria:
1) A patient judged as difficult to participate (be interviewed)in this study per treating physician (specialist)
Care partner
Inclusion criteria:
1) A family member, a relative or a partner who lives together
or regularly and constantly communicate with the patient who is eligible for this study and appointed by the patient
2) 18 years of age or older
None
20
1st name | Nobutaka |
Middle name | |
Last name | Yagi |
Nippon Boehringer Ingelheim Co., Ltd.
Patient Engagement
141-6017
2-1-1 Osaki, Shinagawa-ku,Tokyo, JAPAN
0364172043
nobutaka.yagi@boehringer-ingelheim.com
1st name | Nobutaka |
Middle name | |
Last name | Yagi |
Nippon Boehringer Ingelheim Co., Ltd.
Patient Engagement
141-6017
2-1-1 Osaki, Shinagawa-ku,Tokyo, JAPAN
0364172043
nobutaka.yagi@boehringer-ingelheim.com
Nippon Boehringer Ingelheim Co., Ltd.
Nippon Boehringer Ingelheim Co., Ltd.
Profit organization
Medical Corporation Kyoso-kai AMC Nishi-Umeda Clinic Ethics Review Committee
Maruit Nishi-Umeda Building 3F, 3-3-45 Umeda, Kita-ku, Osaka-shi, Osaka, Japan
0647975660
morikawa@amc-clinic.jp
NO
2022 | Year | 07 | Month | 01 | Day |
Unpublished
Preinitiation
2022 | Year | 05 | Month | 19 | Day |
2022 | Year | 05 | Month | 27 | Day |
2023 | Year | 02 | Month | 01 | Day |
2023 | Year | 08 | Month | 31 | Day |
Non-interventional study
2022 | Year | 06 | Month | 15 | Day |
2022 | Year | 12 | Month | 15 | Day |
Value
https://center6.umin.ac.jp/cgi-open-bin/ctr_e/ctr_view.cgi?recptno=R000054566
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